Working mother of 3 asthmatic boys - two of whom are also on the autism spectrum - tries to make it all work, keep her monkeys healthy, and figure out the cause of (and solution to) the asthma and autism epidemics. Because being the working mother of 3 just wasn't ENOUGH work.
Tuesday, February 14, 2006
Asthma Journal - 2/14/06
So I started a blog instead of a regular journal becuase - hey - I'm a professional Web marketer, after all.
It's become sort of an all-purpose asthma bulletin board, but I really do need to remember to use it as a journal. It's pretty key in keeping up with the boys' health -- especially now that I have three of them!
So...#1 son is home sick today. That rash on his face cleared up for a day or two, then came back badly yesterday, along with a low-grade fever. He's been coughing a little here and there for weeks, but BADLY since Saturday. I've got him on nebs every three hours today.
#2 seems okay, but he was in bad shape Sunday. Seemed to be non-asthma related...whiney, cranky, bad diaper rash, yukky diapers. I suspect he's allergic to grapes, and that was the culprit. But don't know for sure...
Have a call into the PP now. We'll see if #1 son needs to be seen, or if I'll get the usual action plan:
Alternate albuterol and DuoNeb every three hours via nebulizer; Dimetapp at bedtime; keep up Flovent 110 (2 puffs, 2x daily), Singulair, and Nasonex.
$10 bucks on that, unless they want to test for flu.
Tuesday, February 07, 2006
New two-drug treatment for asthma
Rather than easing constriction and swelling, researchers are working on a
treatment that would actually reduce mucus production in the lungs:
A two-drug treatment may one day help restore healthy breathing in those
with asthma and chronic bronchitis, according to a study at Washington
University in St. Louis.
Dr. Michael Holtzman and other researchers found that some cells lining
the air passages of the lungs transform into another cell type in mice and
humans with those disorders, leading to the overproduction of mucus in the
airways.
Though researchers expect it would take at least a few years for
further testing of the treatments, they think that combining two drugs
ultimately could prevent the harmful transformation of the lining cells,
allowing for healthy airway function.
Even if it is a few years off, it's still a glimmer of hope!!
What's up with this kid?
To be continued....
Tuesday, January 31, 2006
#2 Son's Diagnosis
It seems an upper respiratory infection has hit his lungs. Typical - we used to see this in #1 son all the time.
The PP said that "he wasn't moving air well" and his resp rate was up, although his sats were fine. And the poor baby looks and clearly feels miserably.
Bottom line: Nebs every 3 hours around the clock. Alternating DuoNeb and Albuterol (or Xopenex). Zythromax. Continued Flovent. Dimetapp if needed. Hopefully, no Predisolone necessary.
The 'round the clock' bit should be especially fun, since I'm nursing a six-week-old. I'll be in great shape tomorrow!!!
But it beats the PICU, any day.
Bandwidth for Babysitting
Anyway, as luck would have it (for a change) my best friend asked to come over to use my wireless Internet. She just got a new Compaq laptop, and the wireless card wasn't working. She needed to call tech support from a location with an available wireless connection.
So - long story short - I let her use the wireless in exchange for a few hours of babysitting! #2 son got his emergency PP visit, the baby got to sleep safely through the whole thing in the comfort of his own home, and I got to do significantly less schlepping than I thought I would. And to make it a *real* win-win, Compaq tech support was able to resolve my friend's wireless issues.
Sometimes, life can be beautiful.
Thursday, January 19, 2006
Lethargy - Asthma-Related? Or Just a Growth Spurt?
On two seperate occasions, he's come home from preschool, declined dinner, sacked out on the couch, and crashed. And then he slept straight through til morning.
How weird is that?
Now, granted, we're moving next week (albeit six houses away), he's just gotten a new baby brother, and he's gearing up to start kindergarten next year. If he *was* sixteen, it'd be a sure bet that he was suffering from adolescent depression.
But at age four?
Sure, it could be depression, but I really do think he's a happy kid. He loves his little brothers, he's psyched about having a playroom in the new house, and I don't think he's quite grasping the whole moving-to-a-new-school thing for next year.
More likely, he could be having a growth spurt. He's barely fitting into a 4T at age 4.5, and after two years on corticosteroids, it's about time he shot up a few inches!
But could it be a new asthma symptom? Is that possible? I'm sure I learned at our hospital's pediatric asthma class lethargy is a classic symptom. (MENTAL NOTE: retake that class!)
Just to be safe, I'm keeping an eye on his breathing these days.
Isn't it great how we asthma-moms love to make ourselves crazy??
AngryAsthmaMama Featured Blog at Genetics Health
...I'm also a little embarrassed, as I'm a little behind on posting. Blame Baby Iggy -- it's a little tough to keep up with him, work, moving AND blogging!
Friday, January 06, 2006
*So* over breastfeeding....
I'm committed to it, as I already have two asthmatic sons, and I'm determined to give Iggy the best possible odds for beating asthma. And since I nursed my other two, I definitely owe him this.
But, God -- it just SUCKS. I'm so sore, I'm too big for any bra on this planet (seriously, Pamela Anderson would be jealous), and if I do wear one (like if I have to actually see an adult who isn't an immediate relative) I end up with a painful plugged duct.
I know this is temporary. After six weeks, it will be a piece of cake, but this is just HELL.
Ah, the things I do for my boys. (But I promise to never, EVER hold this over any of them!)
For Aisha
But here's what I would suggest: Get a referral to either an Asthma/Allergy specialist or a Pediatric Pulmonologist, if you're not already seeing one.
Since your daughter's asthma clearly isn't under control yet, there are a few different things your doctor might recommend. Possibly, you could increase her Flovent dosage. Or, you could add another medication -- we've got both Singulair and Nasonex in addition to Flovent on my oldest's action plan. It may be something as simple as adding an over-the-counter antihistamine to your daughter's nighttime routine. We find that helps a lot, but I don't know if it's even an option for someone as young as your little girl.
But see a specialist if you haven't yet. Hopefully, there's one near you and on your insurance plan. There's a huge difference between a pediatrician and a pediatric asthma specialist. For us, it made an enormous, life-saving difference.
Some other resources: http://aanma.org - Everything from discount nebulizers to news. But Nurse Christy, an asthma educator you can speak to for free, is by far their best offering.
I also HIGHLY recommend the joining the Asthma Parents discussion list at http://asthmatrack.org/list.html. You'll learn more than you ever thought possible from these wonderful, supportive moms!
Friday, December 30, 2005
Baby Iggy Joins the Family - After a Day in the NICU
Iggy entered the world on December 20, 2005 at 5:52 pm, weighing 6 lb., 7 oz. We didn't know whether to expect a boy baby or a girl baby, and honestly, I didn't have a preference. I just wanted an asthma-free child for a change.
Hah!
After a mercifully short, natural labor, I was handed my warm little Iggy to snuggle. His first APGARs were pretty good, but a few moments later, it was obvious that our little boy was having some trouble breathing. He was whisked away to the nursery, and shortly thereafter, transferred to the NICU, where he stayed for a full 24 hours.
Apparently, because my labor was so quick, Little Iggy was left with some fluid in his lungs. The relatively small number of contractions were not sufficient to clear it all. He was retracting, flaring and grunting. (And if you're an asthma parent, you'll know what all that means.)
The good news: He was fine within 24 hours. The distress resolved itself, and the doctors assured me that this condition is not necessarily a harbinger of asthma later in life. (The fact that he has two asthmatic brothers, on the other hand, probably is!)
Another less-than-encouraging sign: my latest little monkey already appears to have eczema AND his first allergy: to Pampers!! Guess this will be Huggies baby....
Anyway, welcome, Iggy! We're so happy to have you in our family, and we wish you strength and good health in the New Year (and every year)!
Xopenex MDI
XOPENEX HFA(TM) Metered-Dose Inhaler Now Available by Prescription for Patients with Asthma and Chronic Obstructive Pulmonary Disease (COPD) Symptoms
MARLBOROUGH, Mass.--(BUSINESS WIRE)--Dec. 12, 2005--Sepracor Inc. (Nasdaq: SEPR) today announced that XOPENEX HFA(TM) (levalbuterol tartrate) Inhalation Aerosol, a hydrofluoroalkane (HFA) metered-dose inhaler (MDI), is now available by prescription in pharmacies nationwide. XOPENEX HFA is a short-acting beta-agonist indicated for the treatment or prevention of bronchospasm in patients 4 years of age and older with reversible obstructive airway disease. The XOPENEX HFA MDI is a portable, hand-held device consisting of a pressurized canister containing medication and a mouthpiece through which the medicine is inhaled.
Tuesday, December 13, 2005
Baby Due Any Minute! Will S/He Have Asthma Too?
I don't know what I'm having, but boy or girl, I'm just praying this one is not asthmatic. It would be nice to have a helathy child in this family! Perhaps the third time is a charm.
Here's where it might get interesting in comparing the three. Let's assume it's another boy, for argument's sake. (It probably is.)
With #1 son, I ate beautifully. I'm a vegetarian, and I made sure I got my daily (or nearly-daily) serving of pretty much every color vegetable. I steered clear of simple carbs, with the exception of an occasional trip to Johnny Rockets. (Veggie burger, cheese fries and vanilla milkshake. Yummmmmm....) I went for whole grains. I added wheat germ to my yogurt. I drank whole milk. I also walked every day and did yoga regularly.
I intended to deliver naturally, but the hospital wasn't so supportive. I ended up with a nasty episiotomy and some kind of IV drug. Also, this hospital routinely dispenses the Hep B vaccine to newborns.
With #2, I was unemployed for the last trimester, so stress was a little higher as we actually needed money. We also had our house on the market, which was stressful, too. I didn't eat quite as well, but I was still pretty good. I got lots of rest. The weather wasn't suitable for too much walking, but I did some yoga.
#3 is a different tale altogether. I've been working full-time at the office, eating a ton of processed foods (but still probably eating better than most people!), and exercise? Remind me what that is...? Is that the act of walking up the hill to my car every night?
#2 was delivered naturally by a midwife and avoided all unnecessary interventions and vaccinations. #3 will have the same treatment.
So, what are the odds that #3 will develop asthma, too? If he or she doesn't, I guess we'll know for sure it has nothing to do with Mom's eating habits....
Honestly, let's just pray that s/he doesn't develop asthma. It would be nice to have one child that I don't have to administer corticosteroids to. It would be nice to not have to CRANK the monitor every night so I can listen to the babies breathe.
Sigh. I can dream.
Friday, December 09, 2005
Discount Aerochamber Spacers?
If you have another source, of if you've bought from AchooAllergy -- can you share your experience?
Thanks!
Baby's all better...we beat the RSV
But we beat it. After a full week of treatments, we avoided pneumonia and kicked the RSV. Thank God. He's on Flovent 44 daily now, but he seems to be healthy again.
(Of course, he's got a nose full of yellow snot again as of yesterday, but hopefully it's just a cold.)
On another note....sorry I've been so lame about posting. I'm a little preoccupied with the pregnancy, and I've got a TON of work to do before the baby gets here. This must be the way working women nest...instead of cleaning the house, I'm determined to get all my projects done by 12/15. DETERMINED. If I have to work around the clock until them, I'll get those projects done, damnit!
And there will be NO RSV in my house when that little newborn comes home, so help me...
Wednesday, November 23, 2005
Baby has RSV -- From now on, I call the peds. pulmonlogist FIRST
Good thing I did. She listened to him for about two minutes, then promptly ordered a nebulizer treatment, chest X-ray, and tests for RSV and Flu. She said she heard "wheezing in the front and crackling in his back."
Sure enough -- four hours of my prego self dragging the toddler around the massive hospital later -- we got confirmation. He has RSV.
A few hours later, the results of the chest X-ray were back. Apparently, he's had it for a while (so the peds. missed it) because the irritation and inflammation in his lungs is pretty bad.
I don't know why I alwaya question my instincts. I could have called this two weeks ago, before he started the Omnicef. Now I'm really mad that I didn't!!!
Up until yesterday, he was pretty happy during the day, just the spikey fevers at night, along w/rapid, shallow breathing. And the cough, of course.
But last night, the breathing was really bad - and his fever didn't shoot up. Today he's been positively miserable, and -- frighteningly -- not responding well to treatments. He was about 48 resps per minute during his nap, but then he shot up over 50.
I gave him a DuoNeb treatment, and an hour later, he was still at 58. So I did another treatment (per the PP) and gave him his Orapred a few hours early. He dropped into the forties.
Now, less than two hours later, he's well into the 50's again. I'm going to do another treatment, and if he doesn't drop by at least 10 breaths per minute, I'm paging the PP again -- no matter how much of a pain in the ass I appear to be!!
I so don't want this baby to have to deal with being in the hospital -- he's not even 20 months old, and it would be so scary for him. But at the same time, I almost wish they would take him. It's so frightening not knowing what's going on with him. He was at 100% oxygen saturation yesterday, but today -- who knows? I don't own a pulse-oximeter. (Wish I did.) Plus, I'm supposed to be doing nebulizer treatments every three hours around the clock. That's a lot of work. Thank goodness we can sleep in tomorrow (assuming the kids let us).
So...that's the tale so far.
Happy freaking Thanksgiving, right?
Monday, November 21, 2005
Warning for Asthma Drugs Sought
Warnings for Asthma Drugs Sought
ReutersSaturday, November 19, 2005; Page A08
U.S. regulators yesterday asked the makers of three popular asthma medications to add warnings to their labels stating that the drugs could increase the chances of severe asthma episodes that could result in death.
The warnings involve long-acting bronchodilator medicines Advair and Serevent, made by GlaxoSmithKline, and Foradil from Novartis AG. Patients use them daily to relax bronchial muscles and prevent asthma attacks.
In a public health advisory issued on its Web site, the Food and Drug Administration said drugs in the class known as long-acting beta 2-adrenergic agonists should only be used after other medicines fail to control asthma.
Read the whole thing...
#2 Son sick AGAIN
Ten days after we finished the Zithro, he was full of green and yellow gunk and coughing again. And he had a fever again, too. By this point, I'd already taken him to the Peds. Pulomologist for the first time, and he'd gotten an official diagnosis of "mild" Reactive Airways Disease. (I've still yet to find a real definiton of RAD. If anyone has one, please feel free to post it - or a link to it - in the comments. As much as I love our PP, I take the RAD dx as a diagnostic cop-out.)
Anyway, so when the fever persisted, I gave in and put him on Omnicef, largely because the regular ped. said he also had an ear infection.
Five days after finishing the Omnicef, my poor 19-month-old was packed full of mucus again. He started coughing the next day, and the day after that he was spiking fevers of 104. We went through two nights of that, combined with labored breathing and coughing til he gagged...and took him to the regular ped. today.
She said his lungs sounded "pretty clear" (what the heck does that mean?) and she thinks he has a recurrent sinus infection. She wants him on Biaxin, which is pretty hard core. Besides the fact that it tastes awful, it would undoubtedly leave the kid with diarrhea and a diaper rash. Plus, it's really strong for a baby who's not even two yet. Do I want him on such powerful stuff already, unless I know for sure that he needs it?
I normally wouldn't question my pediatrician - who I really respect - so intensely, except for this: Our peds. pulmonologist doesn't seem to believe that toddlers CAN develop recurrent sinus infections. They're sure it's viral.
I guess we'll see when I take #2 there tomorrow.
I just hope it's not RSV.
Anyway, just wish me luck tonight. I've got six weeks of this pregnancy left, I'm pretty darned exhausted, and that little boy is sure to keep me up half the night....I would just love for him to *get* healthy, and for me to *stay* that way!!!
Wednesday, November 02, 2005
AANMA on the Danger of "Mild" Asthma
"Mild Asthma Myths" reminds us all that 'The risk of severe asthma exacerbations seems to be unrelated to the symptom severity." So a child diagnosed with mild asthma is no less likely to suffer a SEVERE attack than a child diagnosed with severe, persistent asthma.
It's a wakeup call for me to always keep that MDI and spacer on hand, whether I'm traveling with Persistent Asthma Boy or Mild RAD Boy.
In a somewhat morbid footnote to the article, moms are invited to order a free copy of the booklet, "Mikey's Mom Didn't Know Asthma Could Kill" by calling AANMA. Is it just me, or is that seriously creepy?
A note to my "regulars"
I'll be back in "full force" next week!
AANMA launches "Breathe: It's the Law" Campaign, BreatheAtSchool.org site
Learn the rules and your rights at http://breatheatschool.org. And kudos to AANMA on their 20th anniversary and the many, many victories they've won for us all.